Skin – day 28

Day: 28

Dosage: 20mg per day

Skin issues: Redness on the sides of my nose, I have a new cyst on the left side of my nose (actually 2 cysts, one slightly smaller than the other but it looks like only one), this time the cyst is completely blind, meaning that there is no head and no chance of it draining which makes it that much more painful than the others.  Its also quite close to my eye and the swelling is a bit uncomfortable.

 

Side effects: My lips are quite dry.  An unexpected side effect, and not wholly unwelcome, is a marked increase in hair loss, I have noticed a more than average loss, especially when I wash my hair.  The fact that my hair is so thick makes this side effect a small bonus 🙂

Improvement: None that I can see.

Skin – Day 17

Day: 17

Dosage: 20mg per day

Skin issues: Redness on the sides of my nose, small (almost gone) cyst on upper lip

Side effects: My skin is slightly dryer than normal but winter is on its way and Im not sure if its weather or meds causing the dryness.  My lips are dry as well, but again, they get like this when winter approaches.  Im using Lansinoh nipple stuff on my lips, best stuff ever!!

Improvement: Far fewer cysts.

Skin – Day 6

So, as many of you know, I have started taking Roaccutane.

I have decided to keep a skin journal and every week or so I will post an update on whats happening, improvements, side effects, even a photo or two…

Day 6

Day: 6

Dosage: 20mg per day

Skin issues: Cysts on either side of my nose (greatly reduced in the last two days), skin under my mouth is ok, small cyst in my right eyebrow, small cyst in my groin.

Side effects: So far the only side effect is that my skin got ‘worse’ on about day 4 (I wish I had thought to take a photo of day 4, you would not believe the difference between then and now!), I developed three cysts, one on the left of my nose and two on the right side of my nose.  Bloody painful but they didnt last as long as usual.  They developed heads within two days (usually takes up to a week) and drained yesterday evening.  Im still red and sore but not as swollen.  P.s. Getting ‘worse’ is par for the course with Roaccutane, they say it takes up to two weeks for the ‘worse’ part to subside…

Improvement: Only that the cysts cleared faster than normal.

Finally

So I called my dermatologist last week (I hadnt seen him in 6 years!) and was told that the first available appointment was in January.  2013!

His receptionist gave me some numbers of other dermos that they recommend and I called around.  The earliest appointment any of them could give me was April!

I took one.

In the mean time he actually called me and consulted over the phone, he recommended I keep my April appointment and put me on his waiting list.

The next day the doctor I had the April appointment with called and said that I could come the next day as they had a cancellation.  I grabbed it!

The reason I wanted to see the dermo is explained in this post.  Go take a look and come back here.

So it turns out that yes, I do have HS in my groin.  But what I have on my face is a severe form of Perioral Dermatitis.

My lovely new dermo suggested I go on a low dose of Roaccutane to sort out my face first.  The HS may or may not be effected by the Roaccutane but we will only be able to tell after the four month course.  If it doesn’t clear up the HS we may have to do a stronger dose for another four months.

I am so happy we may finally have a permanent solution to this.  I am also very very aware of all the side effects to the Roaccutane and am willing to risk them.  These skin issues have been around for over 20 years. TWENTY YEARS of dealing with this on and off and I have finally had enough.

So here is hoping to a permanent fix!  Wish me luck!